1 thought on “Paroxysmal extreme pain disorder (Medical Condition)

  1. The information provided in this video is not quite accurate!

    It’s a hell to have and live with Paroxysmal extreme pain disorder (PEPD). It affects your daily life in very destructive way.

    Mutations in the SCN9A gene cause paroxysmal extreme pain disorder. The SCN9A gene provides instructions for making one part (the alpha subunit) of a sodium channel called NaV1.7. Sodium channels transport positively charged sodium atoms (sodium ions) into cells and play a key role in a cell's ability to generate and transmit electrical signals. NaV1.7 sodium channels are found in nerve cells called nociceptors that transmit pain signals to the spinal cord and brain.

    Paroxysmal extreme pain disorder is a rare condition; approximately 80 affected individuals have been described in the scientific literature.

    I’m one of those 80 individuals that have been diagnosed by this F*ucking condition 🙁
    This video state that there is no treatment or cure for this condition. That information is not quite accurate!

    You can treat Paroxysmal extreme pain disorder with a medication called Tegretol (https://www.drugs.com/tegretol.html) But there is no cure at this time, maybe we will have a cure in about 10 years 2 come.

    You won’t get 100 % protection with Tegretol, but it does help a lot!!! Before I started with Tegretol I was hospitalized and hooked with Morphine iv for almost 2 years.

    Read more about Paroxysmal extreme pain disorder https://ghr.nlm.nih.gov/condition/paroxysmal-extreme-pain-disorder

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