Changing His Autism Medication


Good morning guys
You want to say it? Say good morning guys Morning time
Morning time? Yes. Today is Noah’s psychiatrist appointment we are kind of looking forward to it
because we definitely need something to change a little bit. Things have been a
little bit crazy here guys. I will talk to you guys more about that but I’ve got
to get all the little ones dressed Penelope is dressed. Lex it’s time to
put on your cool little dinosaur shirt but guys like look at the outfit that
Liam is going to be wearing today. There. he’s gonna be so cute and then Penelope
is already dressed because she’s like so adorable. You’re so cute, you’re so cute.
Yeah you are.
No brother’s trying to do his work. Leave brother alone to do his
school work. You’re a little ridiculous right now You’re a little ridiculous [montage music] It’s time to get dressed to go bye-byes. No… Yeah, do you wanna go bye-byes with Mommy? No What’s wrong? Hot hot Oh the cracker? Yeah those are Daddy’s they’re pepper jack
Let’s go find you some shorts. Oh look you have some shorts on right there- what
did you do? You’re so crazy No Lex is not staying here
Don’t tell me Bubby and Sissy are coming too. No Bubby and Sissy are staying home cuz they
don’t want to come to your appointment these are just things that you have to do So we are on the way to
the hospital to get Noah’s blood done he just has to make sure that his levels
are a certain way. Oh well they’ll do it in the part where your sunburn isn’t at. Yeah
guys we are so sunburnt, my back but in order for us to adjust his medication which
I’m pretty sure that’s what’s happening today, they have to see where his levels
are at. I definitely love downtown St. Pete, we actually lived closer to this
area when we first moved down to the St. Pete area 6 years ago, it’s always nice
to kind of come back
Is daddy going to be waiting for us? Yeah I think Daddy’s going to wait in the car because Lex is sleeping and we don’t want to wake up Lex Why are you here?
Why am I here? Yeah.
I work here You do? I do. Are you nervous about having your blood done?
It’s just normally I would go through the pain but I was sunburned and that makes it worse Alright Noah, did it hurt? You were so brave. You did such a good job. I screamed, how do you call that
brave? You still did good! You’re gonna give him a big hug? yeah crush him like batman Oh my goodness my hair looks rough
Not only does Noah have his appointment but I have to stop into the Autism Center to talk to them about Noah’s evaluation and Lex’s How was your doctor’s appointment? Good. So I took Noah to go hang out in the van while I go talk to the autism center because Noah’s
done for the day and I’m done with it Guys this is real life. Oh my god, I
hate appointment days like this but I need to go talk to the Autism Center
about Lex and Noah. He’s just having a really really really rough time Yeah we need to get our A/C checked Something’s going on with our AC guys. In Florida
that is not okay. So all of that is done I got paperwork for Lex, Liam, and Noah
they all need to kind of go through the autism center process. When we saw the
geneticist before we moved here he agreed that it would be a good thing to
get Liam evaluated. We are gonna start like the home therapies and I am going
to sit down and talk to you guys about Noah and the medication adjustment and
all that but today is kind of chaotic Yeah baby? It’s okay baby I know you’re
just having a rough time. The doctor even said was like I have not seen him like
this in a very long time. I’ve got to take care- okay I know that’s what you’ve heard
sweetheart but I have to take care of other stuff when we’re downtown. We don’t
live close to downtown St. Pete, sweetie. It’s just been a long day. Oh, are we not
going to Tijuana Flats? Okay. I want that cookie dough flautas. I am glad Lonnie
came with me though. It’s just nice to like, not feel so alone on these things. We
are going to do some medication adjustments. Again, I’m gonna sit down and
talk to you guys… probably near the end of the day when everything’s kind of
calmed down and I can kind of clear out my thoughts. Oh, we also have to go to
Walmart to get diapers, don’t we? Okay. Alright, so. Organizers? Oh, for the bathroom? Yeah, Probably. That’s a good idea.
That’s why you are my wingman. Oh, I’m sorry is your back sunburned still? Still.. Like we just went to
the beach yesterday, like did his sunburn go away. I’m so sorry honey. I’m a bad wife. Oh, hot.
Mom, is it gonna be hot every day? Yes, we’re in summer and we live in Florida. Are we having kind of hard day today? That’s okay, we’ll get better. Hi Lex, are you
having fun? What are you doing buddy? You playing puzzles? – You’re doing good!
You built it! Let’s see what our other munchkins are doing. What are you doing? What are you
doing? What are you doing? I’m gonna to go to tickle those feet. I’m tickling those feet. I’m going to tickle your feet. You got half a sock. Let’s put your sock back so then I
can tickle it. Yeah… What’s that? Is that it tickle your feet? Is that a tickle your feet? Put your pacifier in. [montage music] Alright guys, It’s the Hot Sauce Bar. [montage music] Is that Nelly? *Nelly coo’ing* [montage music] Are you so happy, was it so good? That is so cool! Daddy unlocked it from the outside on
his app. So, basically Lonnie is gonna take care of things downstairs because
he’s gonna go ahead and start on dinner. I’m going to unpack and clean all the
bathrooms, cuz it’s been about a little over a week since we’ve lived here. So,
it’s time to deep clean them, make sure they’re staying nice and pretty and
clean. Ah, but if I’m being truthful all I really want to do is just… sleep.
Oooh, My sunburn hurts so bad guys. But, I need to get this done. We have to get
this house functional. So ready, set, go! I don’t know if any of you use the Dollar
Shave Club. But, we are in love with the Dollar Shave Club, and no this is not
sponsored. How the Dollar Shave Club works, in case you don’t know. Is it’s
just kind of like a subscription service, you have one razor and it just keeps sending
you refills. It’s wonderful. We love it so so much. The problem is, is if you forget
to put the subscription on standby. You end up with too many refills… This is too
many refills. I think I might even have some more somewhere I really hope
Lonnies put a stop on our subscription. However, we’re kind of making some
progress here. I mean, it doesn’t look like progress, but we’re making progress.
Okay? Alright, LANDing Crew, I did it! I cleaned all of the bathrooms, and oh my
goodness the ceiling fan is obnoxious, it needs some WD-40. I don’t even know if
that’s a thing for fans, but it needs it. So this is our clean bathroom. It kind of
looks like the same from the empty house tour. Our list of things we need, is it’s
kind of becoming a little bit endless… But, we’re doing priorities. So, we need
shower curtains… those can wait, for right now. I unpacked everything to, so this
bathroom was horrendous, because it had a huge box in the middle everything was strung everywhere. So, I organized everything
and then look a little nice a basket, and then look at that bathroom. It felt like the
downstairs bathroom was the worst, like, it’s the one that everyone uses, because
who really wants to walk upstairs like this… just to go potty. Oh, my goodness! Today has been
exhausting! I’ve been really downplaying, the issues we’ve been having with Noah. I
don’t know, I don’t want to seem like I’m complaining about having a special-needs
kid. [oof sound] Like, that’s not what… [pause to laugh] That’s not what our channel is about and that’s not who
we are. So, I’ve just been kind of like downplaying it. These last few weeks, last
month has been just so so hard, so hard on us, so hard on him, and when I talk
about this I don’t want it to come across like we’re playing the “Woe is Us”
card, because I realized that the reason Noah’s having issues is because he’s
struggling so much himself and this is so hard on him, before a couple of months
ago he would have a meltdown like maybe once a month, maybe once every three
weeks. All the first few vlogs you guys saw… This moving and the excitement of
the new house and everything… What it didn’t show was the constant… meltdowns,
the constant issues, the constant. like in the midst of moving and packing and
getting situated in our house with six kids. We would have to take like two
hours out. Like, it’s hard anyway… When you add that in it’s really difficult. He’s
really irritable, and when he’s not irritable… He’s very very high-strung and just very…
He’s just very intense! That doesn’t mean, we don’t realize that he’s struggling.
Knowing that it’s not his fault, and it’s beyond his control… does not make it any
easier for us. So, we definitely knew that he needed to have a medication adjustment.
He’s been on the same medication for like eight nine months, like the same
dosage. Like, we haven’t had to change it. He’s been doing so so good, and that’s
why his psychiatrist was like I have not seen him like this in a very very long
time. He’s right, he hasn’t. Noah has been doing really well. We’ve been so proud of
him, and we still are so proud of Noah. Even though, there’s been so much thrown
out him guys. I mean if you think about it. I had issues near the end of my
pregnancy. I had Penelope. I had issues right after I had Penelope, and that was
scary for him. I can’t even imagine how scary that was for him. Not fully
understanding everything, and then we’re moving to Boston… and we’re not moving to
Boston… and now we’re moving to Clearwater…
Lonnie took three months off and then Lonnie’s back at work… Oh wait! Lonnie’s
home now. Oh wait! We are moving. It was just a lot. It’s a lot. So, I’m very proud
on how he’s accomplished things, but that doesn’t mean that there aren’t issues
that need to be addressed. So, that’s kind of what we did. We had to do his lithium
levels, he takes lithium for pretty much his, like irritability, his
impulsiveness, uhmm, aggression… All of those things that’s come with the lithium does
for him. They have to see where his levels are at, because if his levels are
too high… That means they can’t increase it, they can’t do anything. But, if it’s
low or just kind of like, okay, then we can look at increasing it. So that’s kind
of what they looked at. The only reason I’m going into detail on like his
medications and things, is because we get a lot of questions about them. It’s just
kind of good to know what other kids are on, what works for them, at certain ages
and things like that. He’s on Tenex. He’s on Tenex, during the day
to just kind of help his hyperactivity. It’s mainly just for his symptoms of ADHD,
because once he gets going on that hyperactivity will. It’s a lot. He
literally spends most of the day either, melting
down or screaming from excitement. I’m not.. It’s just like being overwhelmed I
guess. I don’t know, we definitely wanted to address that. He also takes clonidine
at night. Pretty much, they’ve increased his Tenex, which is the Guanfacine and
then they… are keeping the clonidine as is, because the clonidine helps him sleep.
He’s not really having sleeping issues. Thank goodness! They are going to look
into possibly increasing the lithium. So, that’s basically what we did. I don’t
know what else we can do other than just let this medication adjustment, hopefully
help him through the next couple of months. I am going to go edit now because,
I am so behind on videos… It is insane! I need to get all these videos up but,
it’s just like, I can’t find the time. So, I have to find the time today and
tomorrow… but, I love you guys and I hope you guys subscribe! If you like this
video and if you don’t like this video… if you hate it this video.I’m so so
sorry! Lonnie says sarcastically, in the background: “then dislike it!” Yeah! Dislike it! Hit the dislike button,
because so many of you guys love doing that, [joking] But I love you guys and we will see
you tomorrow! [ending credits music]

100 thoughts on “Changing His Autism Medication

  1. Hope you enjoy Lonnie’s editing 😘

    Kids Channel 👉 https://www.youtube.com/channel/UCYCNWzdK_343x8jktTRJlKw

  2. Penelope's smile while Lonnie was putting get in the car seat 😍 . Sorry it's been a bit of a rough ride…hopefully the medication change will help and Noah will be doing better soon! You guys have had a lot of change in the past year and that gets taxing on everyone.
    Also, ooooooh a hot sauce bar! 😂👍
    And good job with cleaning too. It's hard when you have 174748483 things to do and you're super tired.

  3. Thank you for showing both sides. My daughter meltsdown so often anymore, it is crazy! Well unless she's with her father who let's her do whatever. 😡

  4. I think you must be a very patient person. I get anxiety just from the bits you show. Prayers that everything gets settled for Noah and for continued strength for you all!

  5. My son is 8 and has autism as well. He is high functioning however, he also has adhd and odd. He is on 5 different meds. I hate it, but he needs them. I feel you on the appointment days. Your a bad*** mom. I believe strongly that God only gives special need kids yo the strongest mom! Your doing amazing!

  6. When Noah says sorry for a behavior he had. Don’t say it ok. Say thank you for saying your sorry and being sorry because you know how you acted wasn’t ok. Love you Noah

  7. Noah reminds me so much of my 7 year old daughter who has autism just just love ur channel m ur family ty for sharing 😘

  8. Medication can be difficult and you certainly need adjustments for growth and hormone changes. We finally got my daughter stabilized (severe aggression). They almost tried klonadine and lithium (2 separate options) on my daughter after seroquel made her go nuts. Risperdal had worked but she had the side effect of vomiting. I pushed to have the doctor try paliperidone when she was hospitalized because it was considered safe on her gene drug testing. I also read that risperdal turns into paliperidone in the body. Thank goodness it worked! The other meds they had her on and were going to try were all listed as severe gene drug interactions for her and she just kept getting worse on them. It gives me hope that you guys see and recognize the need for adjusting medication! I worry about doctors not listening to me again like when meds were making my daughter worse. You certainly inspire hope that I can do this! <3

  9. Sorry Noah is having such a hard time. Hopefully he'll start feeling more relaxed and comfortable soon. Best wishes!!!!

  10. Regarding Noah's current challenges…. girl! All that your family has been through with the pregnancy stuff, after birth stuff, moving changes, Lonnie's job, etc. is enough to send me into a giant ball of anxiety and I'm not living it. I'm sure that plays a huge role in Noah's need for medication adjustment. And if his levels don't allow an adjustment, well, I'll pray that Noah will settle down as this new home becomes a place of stability and comfort to him.

  11. I just want to say, I'm still loving Lex's hair cut.  He's so stinking cute.  I hope you didn't really just show us the code to get in your house. Hopefully Noah will get the right meds to help him.  My son had ADD & it took some adjustments as well.

  12. My son takes vayvanse helps with his adhd. Not sure if its option but helped so much. Then anxiety med and his melts are so much better and mood swings. He has autism also. Kids are so sweet

  13. You have all my respect! As a teen with mental disorders and a number of chronic illnesses, I essentially live in my doctors’ offices. I see my specialists more than I see my friends, and quite honestly I couldn’t do it if my mom wasn’t by my side through everything. Big appointment days are tough for everyone, and I’m sure it’s extra hard since Noah’s been having an especially rough time recently. I just wanted to say that I see you and I appreciate you, not many parents have what it takes to do what you do every day. Keep it up!

  14. my mom did that with me neurologist speech therapist occupitional therapie when i was a kid my dad was at work

  15. I used to work at All Children’s/Johns Hopkins and Bayfront before moving back to Chicago 4 years ago. Nice place to work and good hospitals.

  16. Stephanie!!! I’m sending you guys sooooo many positive thoughts! And I’m jealous you’re at T-Flats 🙁 I did not know we did not have any up in Chicago when I moved up here LOL go on taco Tuesday for me LOL

  17. Everyone has hard days. You are allowed to complain about the hard days with Noah. We know he is loved and cared for. 💙

  18. You have the patience of a saint. Such a good mother. You’re doing a great job. I hope you know that.

  19. I hope Noah reacts well to the change of medicine Ik it’s hard to have your medicine change and start all over again and get used to it

  20. Hey there! Fellow struggle bus rider here. Hang in there mama we are in a tough time right now with our 5 year old asd daughter too.

  21. Hey I heard you mention that Noah takes clonidine at night. I am also on clonidine twice a day. Once in the morning and once at night. It keeps my blood vessels from shaking. What does it help Noah with if you don't mind me asking. I know that if I miss a dose it feels like everything inside of my body is shaking really bad.

  22. Bless y’all ASD is hard. Just know your doing great, and what we don’t see doesn’t change that ❤️

  23. “Who wants to go all the way upstairs just to go potty?” but I willingly do that at my house every day 😂

  24. Get in contact with the R life they have a special needs child and they live in Florida and are a homeschooling family

  25. Hearing him genuinely apologize in the car reminded me of our son. Sending love his…and your way ❤️

  26. Now you got me wanting cookie dough flattas or however you spell it but I don’t know if I can eat those right now 😕

  27. Mommy needs a treat to.The thing is it is hard adjustment for everyone. Big move and work change a new sibling for any child can be hard enough but adding in haveing a child with autistic child I bet it is hard. Plus the family your a whole as family I would think it is hard routine changes can be so hard for one with autism. As I have seen my cousion go threw it. I have auditory processing disorder so difrent things caise me act like I shouldnt as I shut down so I have sympathy wish you would not feel need down play it. Ad thing is if they dont like the truth oh well. You desver suport anf lots love from others that watch. Not fear of downing it because it's your guys life.

  28. Noah is doing amazing with all of the changes that your family has had, and you are both doing amazing also. My son with Autism just turned 20 and change is so hard on him and everyone in the family. Hang in there mama, once things get kore settled and he is in a routine things will get better. Love to your family,

  29. Love Lonnie’s editing. Penelope looked adorable in her tutu outfit. Stephanie when you unplugged your phone it was completely dead. Noah is so funny…I screamed. How do you call that brave?

  30. Every one of your babies is so beautiful and unique. I love how wholesome and real you are Steph. I hope your summer is going amazing 🐚

  31. I hope the medication is helping Noah! I can imagine how it feels to have so many changes happen so fast. Hang in there! ❤️

  32. Noah has hair cut and so did the kiddos. I hate my hair cut. I cry and scream too Noah when any pain. I hurt my head and not know I am doing that. I so hate Walmart or any stores because I hate shopping I cant do it myself either. I can talk your ear off on Weather. My autism advocate and test came back I am shocked because I am severely autistic disorder. I didnt know how much testing I had to get. It had so much involved. I am not able to do anything that seams simple to me. And my OT has said without technology I be not functioning without YouTube or Facebook. I am in speech therapy and all kinds of therapies. Can I ask you to do a video to help me organize items. Please dont talk about meltdowns. Because I had bad meltdown because listen to you talk about my buddy meltdown. They suck for me too. I sorry me hurt my head. I can say this bipolar meds made me worse. I had no meds that ever help and made things worse. Only med that worked for me Strattera and help me with language. Sorry I hurt my head. Meds made me tired and meltdown worse and never took away sensory problems for me. But I am afraid of meltdowns because they hurt. Me smart and amateur meteorologist and SKYWARN storm Spotters yet I cant function in life and do the simple things like showers, meds, eat, shop, and dressing myself, or anything on my own. Why do it need to struggle

  33. Our Landing Crew I know the change is hard trust me. I suffer the same thing. Severe autistic disorder, sensory problems, auditory disorder, developmental disorder, anxiety disorders, PTSD, and diabetes, pee poo issues, and everything. I like help with meltdowns tips on sensory problems, organizing items in room, money management, or any life skills or activity board ideas. Plus any sensory room ideas. My group home has one but me want a cheap one for my bed room.

  34. At st jude the psychologist talked to me about putting my son on meds for hyperactivity he almost 5. Is that an age you think is to young or not? I just looking for mommas opinion

  35. You never need to say sorry for having a child that has special needs and is struggling with all the changes that has been going on with your family. It's not going to be easy at times but you decide to move to get extra help and focus on not only Noah but your other children and your doing such an amazing job. Don't let anyone tell you different, if I could hug you through my screen I would. 🦔🤗🤗

  36. Noah is such a sweet young man. He realizes after He has a hard time thus apologizing broke my heart a little. I know he cant control his emotions in a meltdown like all of our snk but damn i wish it was easier for them and us💋👍💪❤ your amazing parents!!!

  37. Totally get it! Change is hard or most people but if got other sensitivities it’s a rough road until they feel settled again. At least that’s how my gonna be 13 tomorrow 😳daughter is- plus she has Down syndrome. Every day is different yet very much the same—does that make sense? It is so hard to keep things routine for her but still try and teach her that sometimes things change and you gotta go with it. Prayers and good thoughts for you 🤗❤️

  38. I absolutely love you guys. I’m a new subscriber and I check everyday for new video’s! Sending much love from Boston! Xo

  39. I hear you. My special needs daughter pushes us to the limit. One thing parents are afraid or embarrassed to talk about is when they hit or attack you physically. You are not alone and unless you live with these kids you can’t understand fully.🇦🇺🐨

  40. I am new to your channel and just subscribed! Six kids! Wow, you have a lot of energy. I am also very new to learning about autism and the different spectrums. One thing I have learned is that I don't give the "evil eye" to any mother whose child is misbehaving in public because I don't know what the child is going through. Easy to judge without knowing the facts.

  41. New here . I wAnt to say thank you for explaining the Hard. I’m just now learning about Autism . I have a long ways to go . But I do know the Hard.My guy is the sweetest . But I have said a few times to people all I can say is he is having a hard time . If you don’t have a child with Autism you probably won’t understand.

  42. Girl i understand.. my nephew scream and is hipper .. ik how it is trust me..
    I feel horrible for him .. i think they get confused or they themselves dont understand why they feel the way they do.
    #lovethemanyway
    #hemyAngel

  43. Hi Stephanie you and Lonnie are such great parents. I think you have the most beautiful family never a full moment. Noah is such a strong young man. God Bless you all.

  44. Don't apologize too much for every little thing, Noah because everybody gets cranky at times. I do, too, especially if it is something stupid and unnecessary. A lot of the technology here around Fredericksburg, TX are old and should have been replaced a long time ago.

  45. I've been out of the loop, so I saw posts about moving, but thought it was to Boston, did they stay in Florida instead?

  46. It’s crazy watching your videos! Because my son use to go to that office… now we go in Sarasota because it’s closer but just so crazy and cool at the same time! My son is 14 with autism and much more that go along with it

  47. I'm just wondering what test should I ask for when being tested for autism. My son has been being treated for ADHD but he has emotional and sometimes violent outbursts, he freaks out at loud noises, and also doesn't like being in places that are crowded.

  48. Hey Steph, Zack has tried all of those meds except the lithium. He’s now on depakote, tripatal, seriquil, aderall xr and a tablet mid day and trazadone for sleep. The depakote and seriquil have helped him immensely with the aggression. I hope raising his mgs helps him.

  49. your an amazing mom to your kid's especially Noah because some parents get annoyed and refuse to understand and call them bad. Your awesome and amazing and you take the time to understand his needs and well…. your amazing

  50. So they did a blood test for your son.
    They just prescribed my kid Clonidine (cholesterol medicine) as a medication to help meltdown and anxiety.

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