An Interview With Leah – From Autism Speaks’ “awareness” to autism acceptance


Hi friends! So, I’m here at the Autism Speaks
walk, which ASAN is protesting, so I’m with ASAN protesting. And the walk is pretty much
over and things are winding down. I’m here with one of the people who came to join us and protest
with us today, this is Leah. – Hello. – [Laughs] So I just. I met Leah today and I was very interested
and, I guess touched, by her story. And I just wanted to give her a chance to share
it. So could you talk about how you, um, came to know what ASAN is and protest with us this
year. – Okay. I um, I saw your table at the last year’s Autism walk, which was at Science
World around that area, and noticed the ear plugs right away, and, “Oh, you know, these
people speak for our family”. – Yeah. – My son has Autism, and has sound sensitivities,
so when I saw that I went over and started talking to you guys, and grabbed a pamphlet.
I’m very glad that you had a pamphlet to take home, so I went and found you, and… -That’s
the power of words. – Yeah. So we started talking, my son and I, about the different
alternatives we could do with our time and our power, and so he decided that he wanted
to protest this year, and so here we are. – I think that’s an amazing story. You are
such a supportive parent! Holy cow! I wish everybody was as supportive as you. – Aw.
– And so your son, Jordan, how old is he? – He’s thirteen. – Thirteen. – Yes. – That’s
the age when you really start to come into yourself and into your identity, and so what
a great time to hear the message that, “You aren’t broken, you’re different”. And, like,
“It’s okay to be disabled, it’s okay to be who you are”. – Yep. Different, not less.
– Different not less, that’s right. – Right. -And so, if you could say something to those
parents out there who are still supporting Autism Speaks, or who aren’t, you know, they
might even be anti-ASAN, what would you say to them? – Um. I would like people to know
that there is a lot of different organizations. I think we found Autism Speaks because it
was the biggest and it was that sense of community, that you could gather with other people. So
that’s why we were there, it was nothing to do with what they believed in or anything,
but then as we went into it finding out more about [laughs] what they represent, which
we don’t agree with at all. Um, But that would be what I would say, that there are other
places. Whether it is ASAN, or Canucks Autism Network, or it’s… You know, whatever. Groups
online, I’m part of a lot of online Autism mom groups where we meet up and we get together
with our kids and let them just be. You know? So just find community. Doesn’t have to be
Autism Speaks. – Cool. So it’s the biggest, but it’s not your only option. And it’s definitely
not your best option. – It’s not your best option. – No! – No. No. And I think I’ve told
a few people here today, that a lot of the other fundraisers that I know from previous
years, are all also gone from Autism Speaks. They raise money for other, local organizations
that actually do services for them, beneficial things for our children. – So, slowly but
surely, Autism Speaks supporters are coming over the light side. And we’re so happy to
have them, and I’m so happy to have you Leah, and to have met you today. – Thank you, I’m
happy to meet you guys too. – Thank you for answering my questions, and, um, bye friends!
– Bye.

25 thoughts on “An Interview With Leah – From Autism Speaks’ “awareness” to autism acceptance

  1. I love this! I'm also Canadian and Autistic, too bad I'm on the other side of the country or I would have definitely came out to protest

  2. she asked her son what he wanted! egads….someone listened to us! hooray! (throws confetti) we need more people like Leah. Seeeeee….we CAN speak! You just ain't listening!

  3. ~~~~(^____^)/~~~~ this video has brightened my day, because cool accepting mum & seeing the normality of rocking away(was it a mixture of happy & dealing with noisey cars? Sometimes i can't tell if its emotional or sensory when i rock & sway xD so many aspects to the same stims that i find it kinda fascinating).

  4. Thanks guys. πŸ™‚ I couldn't figure out why I had such a conflicted feeling about certain groups supposedly out to support Autism, especially that one. I'm about to research some things, but is there anyone that could give me a summarization of what the heck went wrong with them? lol. Sorry. πŸ˜› Again, thanks so much! You have encouraged me once again and I'm this much 80% closer to making a video on Autism/SPD awareness. -sigh. πŸ™‚

  5. Seeing your subtle rocking in this video makes me happy. I was told by a teacher that my rocking was creepy and she complained to my mom about it. Since then, I've always been scared to do it.

  6. The problem what I have with those walks is that they claim to care about sensory. Yet they are loud, they have balloons everywhere. In fact one little boy kicked me because he was so overwhelmed which was in Atlanta.

  7. Amethyst, I absolutely agree with you. We need to encourage more community type of organizations. My idea of an autism support group should take place in a subdivision where you don't have all these intimidating terms.

  8. That interview was great! I could tell you were nervous, but you pushed through. I get really nervous about that kind of stuff, and I feel that you're a great inspiration πŸ™‚

  9. Subscribe to Amythest Schaber if you know Autism β€œ$peak$” is to US is what NAMBLA are to CHILDREN and are in on the whole Clinton/Jeffrey Epstein Affair!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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